Endometriosis: The Pain That’s Ignored – A Study on Public Knowledge and Misdiagnosis in Women of Kangra
Background: Endometriosis is a chronic gynecological disorder characterized by the presence of endometrial-like tissue outside the uterus, leading to chronic pelvic pain, infertility and impaired quality of life. Normalization of severe menstrual pain and cultural stigmas contribute to delayed diagnosis and ongoing suffering among women. This study aimed to assess public knowledge of endometriosis and examine factors contributing to misdiagnosis and treatment delays among women in Kangra. Materials and Methods:A descriptive, cross-sectional online survey was conducted from January to March 2025 among women aged 18–45 years residing in Kangra district. A structured, bilingual (Hindi and English) questionnaire was distributed digitally, assessing socio-demographic characteristics, symptom awareness, knowledge of endometriosis and healthcare-seeking behaviors. A total of 400 participants completed the survey. Data were analyzed using IBM SPSS version 26.0, with descriptive statistics summarizing awareness levels. Knowledge scores were categorized into four groups: Very Good (≥80%), Good (60–79%), Fair (40–59%) and Poor (<40%). Results:Among participants, the majority were aged 26–35 years (44.5%) and had completed secondary (40.5%) or undergraduate (34.5%) education. Although 79.0% correctly identified endometriosis as the abnormal growth of uterine tissue outside the uterus and 80.0% recognized chronic pelvic pain as a major symptom, misconceptions persisted. Only 62.8% knew that laparoscopy is the definitive diagnostic method and 61.5% correctly acknowledged the typical 7–10 year diagnostic delay. In total, 34.0% demonstrated Very Good awareness, 42.5% had Good awareness, 18.5% had Fair awareness and 5.0% had Poor awareness. A significant proportion (around 25%) still normalized severe menstrual pain, highlighting ongoing stigma and gaps in health literacy. Conclusion: While foundational awareness of endometriosis was encouraging among women in Kangra, critical gaps and misconceptions remain, particularly regarding diagnosis timelines and management options. The normalization of menstrual pain persists as a significant barrier to timely healthcare-seeking behavior. Community-level health education, stigma reduction initiatives and targeted public health interventions are essential to promote early recognition, accurate diagnosis and better outcomes for women suffering from endometriosis in rural India.