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Research Article | Volume 4 Issue 2 (July - Dec, 2024) | Pages 1 - 6
Public Awareness of Growth and Developmental Disorders in Children and Adolescents in District Solan: A Focus on Autism and ADHD
 ,
1
MO Pediatrics at CH Arki, Solan, H.P India
2
Junior resident in Pediatrics at Dr RPGMC Tanda, H.P India
Under a Creative Commons license
Open Access
Received
June 5, 2024
Revised
June 15, 2024
Accepted
July 20, 2024
Published
July 30, 2024
Abstract

Background: Growth and developmental disorders, particularly autism spectrum disorder (ASD) and attention deficit hyperactivity disorder (ADHD), are significant public health concerns that profoundly impact children's academic, social, and emotional development. This study aims to assess the level of public awareness and knowledge about ASD and ADHD among the general population in District Solan, identifying knowledge gaps to inform targeted public health interventions. Materials and Methods: A descriptive, cross-sectional survey was conducted from January to May 2024 in District Solan, Himachal Pradesh. The study included 400 participants aged 18 years and older, selected to provide a representative assessment of public awareness and knowledge of ASD and ADHD. Data were collected using a structured, self-administered online questionnaire consisting of 20 questions covering the definition, symptoms, risk factors, and management of ASD and ADHD. The responses were scored, and knowledge levels were categorized as excellent (16-20 points), good (12-15 points), fair (8-11 points), and poor (below 8 points). Descriptive statistics, including frequencies and percentages, were used to analyze the data. Results: The study found that 78.0% of participants were aware of ASD, while 71.0% had heard of ADHD. However, knowledge gaps were evident, with only 63.5% of respondents aware that ASD is more common in boys and 65.5% recognizing delayed speech as a symptom of ASD. Similarly, 74.5% of participants correctly identified hyperactivity and impulsivity as key characteristics of ADHD. The importance of early diagnosis was recognized by 69.5% of respondents, and 72.5% acknowledged the critical role of parental support in managing these disorders. Overall, 21.5% of participants demonstrated excellent knowledge, 35.5% had good knowledge, 27.0% had fair knowledge, and 16.0% had poor knowledge. Conclusion: While there is a reasonable level of general awareness about ASD and ADHD among the population in District Solan, significant gaps in specific knowledge persist. These gaps highlight the need for targeted public health interventions that promote a deeper understanding of these developmental disorders. Enhancing public education on the symptoms, risk factors, and management strategies for ASD and ADHD is essential for improving early recognition and ensuring timely intervention.

Keywords
INTRODUCTION

Growth and developmental disorders, particularly autism spectrum disorder (ASD) and attention deficit hyperactivity disorder (ADHD), represent significant public health challenges that affect children and adolescents across the globe. These disorders can lead to profound impacts on a child's academic performance, social interactions, and overall well-being. Autism Spectrum Disorder is characterized by difficulties in social communication and interaction, along with restricted and repetitive behaviors, while attention deficit hyperactivity disorder manifests as persistent patterns of inattention, hyperactivity, and impulsivity. Early diagnosis and intervention are crucial for managing these disorders and improving long-term outcomes, yet awareness and understanding of these conditions remain inadequate, particularly in rural and semi-urban areas.1-6

 

In India, the lack of awareness about developmental disorders is compounded by societal stigma and limited access to specialized healthcare services. District Solan in Himachal Pradesh, with its blend of rural and semi-urban communities, exemplifies these challenges. Public understanding of disorders like ASD and ADHD is often minimal, leading to delays in diagnosis and intervention that can significantly affect the developmental trajectory of affected children. This study aims to assess the level of public awareness and knowledge about autism spectrum disorder and attention deficit hyperactivity disorder among the general population in District Solan. By identifying existing knowledge gaps, the research seeks to inform targeted public health interventions and educational programs, which are essential for promoting early recognition and effective management of these developmental disorders.

MATERIAL AND METHODS

Research Approach

This study utilized a descriptive, cross-sectional survey design to evaluate public awareness and knowledge of autism spectrum disorder (ASD) and attention deficit hyperactivity disorder (ADHD) among the general population in District Solan, Himachal Pradesh.

 

Study Area

The research was conducted in District Solan, a region characterized by both rural and semi-urban populations. The district’s diverse demographic profile provided an appropriate setting for assessing public awareness of developmental disorders.

 

Study Duration

The survey was conducted over a five-month period, from January to May 2024.

 

Study Population

The study targeted the general population of District Solan, including adults aged 18 years and older. This population was chosen to gauge the level of awareness and knowledge about developmental disorders among a broad demographic, which includes potential parents, educators, and community members who may influence the early identification and support of children with ASD and ADHD.

 

Sample Size

A sample size of 400 participants was determined using a 95% confidence level and a 5% margin of error. This sample size was selected to ensure a representative and statistically reliable assessment of public awareness and knowledge within the district.

 

Study Tool

Data were collected using a structured, self-administered online questionnaire. The questionnaire was designed to be comprehensive and accessible, covering the following key sections:

  1. Socio-Demographic Information: This section gathered essential demographic data, including age, gender, education level, occupation, and whether the respondent had children. This information was crucial for understanding the context of the respondents’ knowledge levels.

  2. Knowledge and Awareness Assessment: The core of the questionnaire consisted of 20 structured questions designed to assess the participants' understanding of Autism Spectrum Disorder and Attention Deficit Hyperactivity Disorder. These questions addressed various aspects, including:

  • Definition and Nature: Basic knowledge of ASD and ADHD, including their characteristics and differences from other developmental disorders.

  • Symptoms and Signs: Awareness of the behavioral and emotional symptoms associated with these disorders.

  • Risk Factors: Understanding of the factors that may increase the likelihood of a child developing ASD or ADHD.

  • Impact: Knowledge about the potential impacts of these disorders on a child’s academic, social, and emotional development.

  • Intervention and Support: Awareness of the importance of early diagnosis, available treatment options, and the role of family and community support in managing these disorders.

 

Each correct response was awarded one point, with the total score ranging from 0 to 20. The scores were categorized to assess overall knowledge levels:

  • Excellent Knowledge: 16-20 points

  • Good Knowledge: 12-15 points

  • Fair Knowledge: 8-11 points

  • Poor Knowledge: Below 8 points

 

This scoring system provided a nuanced understanding of the knowledge distribution across the sample population.

 

Pre-Testing and Validation

The questionnaire was pre-tested on a small, representative group of individuals from District Solan to ensure that the questions were clear, relevant, and suitable for the target population. Feedback from the pre-test was used to refine the questionnaire, ensuring that it effectively assessed the knowledge and awareness levels of the participants.

 

Data Collection

The survey was conducted online using platforms such as Google Forms. The questionnaire link was distributed through various community networks, including social media platforms, local organizations, and community groups. Participation was voluntary, and informed consent was obtained from all participants before they completed the survey. The survey remained open until the target of 400 complete responses was achieved.

 

Data Analysis

The collected data were carefully cleaned and entered into Microsoft Excel for initial organization. Statistical analysis was performed using Epi Info V7 software. Descriptive statistics, including frequencies and percentages, were used to summarize the socio-demographic characteristics and the knowledge levels of the participants. The knowledge scores were analyzed to identify significant patterns and gaps in awareness.

 

Ethical Considerations

The study adhered to ethical guidelines, ensuring the confidentiality and anonymity of all participants. Informed consent was obtained from each participant prior to their involvement in the survey. Additionally, participants were provided with information on where to seek further help or information if the survey content raised any personal concerns about developmental disorders.

RESULTS

The results of the study are presented in the following tables, summarizing the socio-demographic characteristics of the participants, their awareness and knowledge of autism spectrum disorder (ASD) and attention deficit hyperactivity disorder (ADHD), and their overall knowledge scores.

 

Table 1: Socio-Demographic Characteristics of Study Participants (N=400)

Variable

Category

Frequency (n)

Percentage (%)

Age

18-29 years

94

23.5

 

30-39 years

138

34.5

 

40-49 years

96

24.0

 

50 years and above

72

18.0

Gender

Male

182

45.5

 

Female

218

54.5

Education Level

Below High School

68

17.0

 

High School

132

33.0

 

Graduate

150

37.5

 

Postgraduate

50

12.5

Occupation

Employed

212

53.0

 

Unemployed

74

18.5

 

Self-Employed

114

28.5

Parent Status

Yes (has children)

243

60.8

 

No (no children)

157

39.2

The socio-demographic data indicate a diverse sample, with the largest age group being 30-39 years (34.5%). The sample had a slight majority of female participants (54.5%). Most participants had at least a high school education, with 37.5% being graduates. A significant portion of the respondents were employed (53.0%), and the majority were parents (60.8%).

 

Table 2: Awareness of Autism Spectrum Disorder (ASD) (N=400)

Question Number

Question

Correct Option

Correct Responses (n)

Correct Responses (%)

Q1

Have you heard of Autism Spectrum Disorder (ASD)?

Yes

312

78.0

Q2

Can ASD affect a child’s ability to communicate?

Yes

295

73.8

Q3

Is ASD more common in boys than in girls?

Yes

254

63.5

Q4

Can early intervention improve outcomes for children with ASD?

Yes

280

70.0

The results show that 78.0% of participants were aware of autism spectrum disorder (ASD), and 73.8% knew that ASD affects a child’s ability to communicate. However, fewer participants (63.5%) were aware that ASD is more common in boys than in girls. A significant majority (70.0%) recognized the importance of early intervention in improving outcomes for children with ASD.

 

Table 3: Awareness of Attention Deficit Hyperactivity Disorder (ADHD) (N=400)

Question Number

Question

Correct Option

Correct Responses (n)

Correct Responses (%)

Q5

Have you heard of attention deficit hyperactivity disorder (ADHD)?

Yes

284

71.0

Q6

Can ADHD affect a child’s academic performance?

Yes

276

69.0

Q7

Is ADHD characterized by hyperactivity and impulsivity?

Yes

298

74.5

Q8

Can children with ADHD benefit from behavioral therapy?

Yes

270

67.5

The study found that 71.0% of participants were aware of attention deficit hyperactivity disorder (ADHD). Knowledge about the impact of ADHD on academic performance was slightly lower at 69.0%. Awareness of hyperactivity and impulsivity as key characteristics of ADHD was higher (74.5%), while 67.5% of participants recognized the benefits of behavioral therapy for children with ADHD.

 

Table 4: Knowledge of Symptoms and Risk Factors for ASD and ADHD (N=400)

Question Number

Question

Correct Option

Correct Responses (n)

Correct Responses (%)

Q9

Is delayed speech a symptom of ASD?

Yes

262

65.5

Q10

Are repetitive behaviors a characteristic of ASD?

Yes

254

63.5

Q11

Is difficulty in maintaining attention a symptom of ADHD?

Yes

285

71.3

Q12

Can family history increase the risk of ASD or ADHD?

Yes

244

61.0

The results indicate that knowledge of specific symptoms of ASD, such as delayed speech (65.5%) and repetitive behaviors (63.5%), was somewhat moderate. Awareness of attention difficulties as a symptom of ADHD was higher at 71.3%. Fewer participants were aware that family history can increase the risk of developing ASD or ADHD (61.0%).

 

Table 5: Knowledge of Impact and Management Strategies for ASD and ADHD (N=400)

Question Number

Question

Correct Option

Correct Responses (n)

Correct Responses (%)

Q13Can ASD and ADHD impact a child’s social interactions?Yes29473.5
Q14Is early diagnosis crucial for managing ASD and ADHD effectively?Yes27869.5
Q15Can children with ASD benefit from structured educational programs?Yes26766.8
Q16Is parental support essential in the management of ASD and ADHD?Yes29072.5
Q17Are medications available to help manage symptoms of ADHD?Yes27669.0
Q18Can behavioral therapy be effective in treating children with ASD and ADHD?Yes28070.0
Q19Is there a need for regular follow-ups with healthcare providers for children with ASD?Yes26265.5
Q20Do children with ASD and ADHD benefit from social skills training?Yes27368.3

The results show that a significant majority of participants (73.5%) were aware that ASD and ADHD can impact a child’s social interactions. Knowledge of the importance of early diagnosis in managing these disorders was slightly lower at 69.5%. Awareness of the benefits of structured educational programs for children with ASD was moderate (66.8%), while 72.5% recognized the critical role of parental support in managing these conditions.

 

Table 6: Overall Knowledge Scores on ASD and ADHD (N=400)

Knowledge Score Category

Score Range

Frequency (n)

Percentage (%)

Excellent Knowledge

16-20

86

21.5

Good Knowledge

12-15

142

35.5

Fair Knowledge

8-11

108

27.0

Poor Knowledge

Below 8           

64

16.0

The overall knowledge scores indicate that 21.5% of participants demonstrated excellent knowledge (16-20 correct answers), while the majority (35.5%) had good knowledge (12-15 correct answers). A significant portion of participants fell into the fair knowledge category (27.0%), with 16.0% scoring in the poor knowledge range, highlighting areas for improvement in public education on ASD and ADHD.

DISCUSSION

The findings of this study offer valuable insights into the current state of public awareness and knowledge regarding Autism Spectrum Disorder (ASD) and Attention Deficit Hyperactivity Disorder (ADHD) among the general population in District Solan. While the study reveals a moderate level of general awareness about these developmental disorders, significant gaps in specific knowledge, particularly regarding symptoms, risk factors, and management strategies, are evident. These gaps have critical implications for the early identification, intervention, and management of ASD and ADHD, which are essential for improving long-term outcomes for affected children.

 

The study found that a majority of the participants (78.0%) had heard of ASD, and 71.0% were aware of ADHD, indicating a relatively high level of general awareness. However, awareness alone is insufficient if it is not accompanied by a comprehensive understanding of the disorders. For instance, while many participants recognized that ASD and ADHD can affect communication and academic performance, fewer understood the nuances of these conditions. Only 63.5% of respondents knew that ASD is more common in boys than in girls, and 65.5% were aware that delayed speech is a common symptom of ASD. Similarly, while 74.5% of participants correctly identified hyperactivity and impulsivity as key characteristics of ADHD, knowledge of other important symptoms, such as attention difficulties, was slightly lower.5-8

 

These findings highlight the need for public health initiatives that not only raise awareness but also deepen understanding of these disorders. Without a thorough knowledge of the symptoms and characteristics of ASD and ADHD, early recognition and intervention are likely to be delayed, which can have significant negative impacts on a child's developmental trajectory.

 

The study also uncovered gaps in the public's understanding of the risk factors associated with ASD and ADHD. Only 61.0% of participants were aware that family history can increase the risk of these disorders. This lack of awareness is concerning, as it may prevent parents from recognizing early signs of developmental issues in their children, particularly if they have a family history of such disorders. Moreover, the moderate awareness of the impacts of ASD and ADHD on social interactions and academic performance suggests that many people may not fully appreciate the wide-ranging effects these disorders can have on a child’s life.7-10

 

Addressing these knowledge gaps is critical for fostering a more supportive environment for children with developmental disorders. Educators, healthcare providers, and community leaders should work together to disseminate information about the risk factors and impacts of ASD and ADHD, ensuring that parents and caregivers are better equipped to identify early signs and seek appropriate help.

 

One of the most encouraging findings of the study is that a significant majority of participants (69.5%) recognized the importance of early diagnosis in effectively managing ASD and ADHD. This awareness is crucial, as early intervention is one of the most effective strategies for improving outcomes for children with these disorders. However, the study also revealed that only 66.8% of participants were aware of the benefits of structured educational programs for children with ASD, and 72.5% understood the importance of parental support in managing these conditions.

 

These results underscore the need for public health campaigns to emphasize not only the importance of early diagnosis but also the comprehensive management strategies that can help children with ASD and ADHD thrive. Such strategies include tailored educational programs, behavioral therapies, and strong support networks involving parents, teachers, and healthcare providers. By promoting a holistic approach to the management of these disorders, public health initiatives can help ensure that affected children receive the support they need to achieve their full potential.6-8

 

The variability in overall knowledge scores, with only 21.5% of participants demonstrating excellent knowledge, highlights the urgent need for targeted educational interventions. While general awareness of ASD and ADHD is relatively high, the specific knowledge gaps identified in this study suggest that many people lack the detailed understanding necessary to recognize and respond effectively to these disorders.

 

To address these gaps, public health efforts in District Solan should focus on providing accurate, accessible information about the symptoms, risk factors, and management of ASD and ADHD. Schools can play a pivotal role in this effort by integrating mental health education into the curriculum, ensuring that both students and teachers are well-informed about these conditions. Additionally, community-based programs that involve parents and caregivers can help build a more supportive environment for children with developmental disorders.8-10

 

The findings of this study are consistent with existing research that highlights a general lack of detailed knowledge about developmental disorders, even in populations with relatively high levels of general awareness. Similar studies conducted in various regions have shown that while many people are aware of terms like "autism" and "ADHD," they often lack a deep understanding of what these disorders entail, how they manifest, and what can be done to support affected children.6-9

 

This study contributes to the growing body of evidence that emphasizes the need for comprehensive public health education as a means of improving early detection and intervention for developmental disorders. By aligning public health strategies with the specific knowledge needs identified in this study, it is possible to make significant progress in the early identification and effective management of ASD and ADHD.

CONCLUSION

In conclusion, while the study found a reasonable level of general awareness about Autism Spectrum Disorder and Attention Deficit Hyperactivity Disorder among the general population in District Solan, significant knowledge gaps remain. These gaps, particularly in understanding the symptoms, risk factors, and management strategies for these disorders, have critical implications for the early identification and effective management of affected children. Public health initiatives in District Solan should focus on addressing these gaps through targeted educational interventions that promote a deeper understanding of ASD and ADHD. By doing so, it is possible to improve early recognition, ensure timely intervention, and ultimately enhance the developmental outcomes for children with these disorders. Continued research and community engagement will be key to achieving these goals and ensuring that all children in District Solan have the opportunity to reach their full potential.

REFERENCES
  1. nushka, D., and A. Srinivasan. "Study of Knowledge About the Developmental Milestones of Children in Primiparous Mothers." Journal of Ecophysiology and Occupational Health, vol. 24, no. 2, 2024, pp. 199-203. doi:10.18311/jeoh/2024/v24/i2/101759.

  2. Ostrowski, J., U. Religioni, B. Gellert, J. Sytnik-Czetwertyński, and J. Pinkas. "Autism Spectrum Disorders: Etiology, Epidemiology, and Challenges for Public Health." Medical Science Monitor, vol. 30, 4 June 2024, e944161. doi:10.12659/MSM.944161.

  3. Lord, C., M. Elsabbagh, G. Baird, and J. Veenstra-Vanderweele. "Autism Spectrum Disorder." The Lancet, vol. 392, no. 10146, 11 Aug. 2018, pp. 508-520. doi:10.1016/S0140-6736(18)31129-2.

  4. Rong, Y., C. J. Yang, Y. Jin, and Y. Wang. "Prevalence of Attention-Deficit/Hyperactivity Disorder in Individuals with Autism Spectrum Disorder: A Meta-Analysis." Research in Autism Spectrum Disorders, vol. 83, 2021, p. 101759. doi:10.1016/j.rasd.2021.101759.

  5. Liu, Y., L. Wang, S. Xie, S. Pan, J. Zhao, M. Zou, and C. Sun. "Attention Deficit/Hyperactivity Disorder Symptoms Impair Adaptive and Social Function in Children with Autism Spectrum Disorder." Frontiers in Psychiatry, vol. 12, 2021, p. 654485. doi:10.3389/fpsyt.2021.654485.

  6. Schachar, R. J., A. Dupuis, P. D. Arnold, E. Anagnostou, E. Kelley, S. Georgiades, R. Nicolson, P. Townes, C. L. Burton, and J. Crosbie. "Autism Spectrum Disorder and Attention-Deficit/Hyperactivity Disorder: Shared or Unique Neurocognitive Profiles?" Research on Child and Adolescent Psychopathology, vol. 51, no. 1, Jan. 2023, pp. 17-31. doi:10.1007/s10802-022-00902-8.

  7. Anchesi, S. D., F. Corallo, M. Di Cara, A. Quartarone, R. Catalioto, F. Cucinotta, and D. Cardile. "Autism and ADHD: A Literature Review Regarding Their Impacts on Parental Divorce." Children, vol. 10, no. 3, 23 Feb. 2023, p. 438. doi:10.3390/children10030438.

  8. Miyasaka, M., S. Kajimura, and M. Nomura. "Biases in Understanding Attention Deficit Hyperactivity Disorder and Autism Spectrum Disorder in Japan." Frontiers in Psychology, vol. 9, 2018, p. 244. doi:10.3389/fpsyg.2018.00244.

  9. Hyman, S. L., S. E. Levy, and S. M. Myers. "Identification, Evaluation, and Management of Children with Autism Spectrum Disorder." Pediatrics, vol. 145, no. 1, 2020, e20193447. doi:10.1542/peds.2019-3447.

  10. Murray, M. J. "Attention-Deficit/Hyperactivity Disorder in the Context of Autism Spectrum Disorders." Current Psychiatry Reports, vol. 12, no. 5, 2010, pp. 382-388. doi:10.1007/s11920-010-0138-3.

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